Exploring Psychological Well-being in Indian Mothers of Children with Autism Spectrum Disorder- A Qualitative Study
Keywords:
Autism spectrum disorder, Mother, Primary caregivers, Psychological well-being, Psychological components, Psychological healthAbstract
Purpose: This qualitative study explores the psychological well-being of Indian mothers who are primary caregivers of children with Autism Spectrum Disorder (ASD). The research investigates the unique challenges, coping strategies, and emotional experiences of these mothers within the cultural and familial context of India.
Design/Methodology/Approach: Through in-depth interviews of 61 mothers, and thematic analysis, the study aims to uncover the multifaceted aspects of psychological well-being, including autonomy, competence, healthy relationships, self-acceptance, personal growth, and purpose in life by cross-sectional design with interpretivism and an inductive approach.
Finding/Result: Psychological well-being (PWB) was assessed by measuring the fulfillment of personal desires, meaning and acceptance of life, learning new experiences in life, connectedness or positive relations, goal setting, achievements, and satisfaction. The 6 items PWB1, PWB2, PWB3, PWB4, PWB5, and PWB6 of the PWB as a construct demonstrated to measure the psychological well-being of mothers of autistic children. Despite the challenges, it explores how mothers perceive their ability to meet their child's desires and needs through sacrifices in caring for their child with special needs.
Originality/Value: The objective of investigating the factors that provide meaning, purpose, and fulfillment to mothers in their roles as primary caregivers to children with ASD carried out. Themes of autonomy, competence, healthy relationships, self-acceptance, personal growth, and purpose in life emerged as critical components influencing their psychological well-being. These themes collectively aimed to provide a comprehensive understanding of the psychological well-being of Indian mothers caring for children with ASD, informing future research, on intervention strategies to better support these mothers and their families.
Paper Type: Case study-based analysis
