Exploring Quality of Life Dimensions Among Indian Mothers of Children with Autism Spectrum Disorder- A Qualitative Analysis
Keywords:
Autism spectrum disorder, Mother, Primary caregivers, Psychological well-being, Quality of LifeAbstract
Purpose: This study aims to explore the comprehensive understanding of the quality of life (QoL) of Indian mothers raising children with Autism Spectrum Disorder (ASD). Given the cultural and socio-economic context of India, this research seeks to analyze how having a child with ASD affects family dynamics, including relationships within the family and overall family functioning.
Design/Methodology/Approach: A qualitative research design was employed, utilizing in-depth, semi-structured interviews with 61 Indian mothers of children diagnosed with ASD. Participants were recruited through autism support groups and clinics across various regions of India. Thematic analysis was used to identify and interpret patterns and themes within the interview data.
Finding/Result: QoL was constructed to measure positive emotions, support systems, and social relationships, with acquired additional skills and knowledge, to improve quality of life concerning leisure activities as one of the primary indicators of QoL. The concept of "Leisure Becoming" revolves around activities and practices that foster relaxation and stress reduction, contributing to overall well-being. These activities are integral to maintaining balance in life and can help individuals manage stress and enhance their quality of life.
Originality/Value: The construct QoL is the 5-item Quality of Life measure (QoL). The 5 items QoL1, QoL2, QoL3, QoL4, and QoL5 of the QoL construct measure, QOL construct specific to the leisure domain. Leisure activities are one of the primary indicators of QoL, which measures the subjective well-being of an individual and influences life values and needs.
Paper Type: Case study-based analysis
